Half a hospital room needed for 16-year-old Luna from Goutum to enjoy a few hours out

Sixteen-year-old Luna Wassenaar from Goutum lives with the rare North Sea progressive myoclonus epilepsy, which has drastically altered her life. Her mother Renske spoke about her daughter's physical decline, the family's resilience, and their hope for a medical breakthrough. Even a short outing now requires carrying a large amount of medical equipment.